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Aurora is a very happy, inquisitive child who just celebrated her 7th birthday. She is looking forward to starting her 2nd-grade year beginning this August. She and her family are happy to celebrate two and a half years of seizure free. Aurora had her first seizure when she was six years old. Sometimes, the seizure activity would be associated with a fever or illness. Other times, it would not. After years of testing and documenting seizure activity, her neurologist officially diagnosed Aurora with epilepsy after a 15-minute long seizure and began treatment.
Aurora began preschool shortly after she turned four years old. It was rather evident Aurora had speech delays and was in need of speech therapy. There was concern regarding Aurora's fine motor skills. Aurora began to participant in occupational therapy. During the initial IEP meeting, the question came up about Aurora's medical card which we did not have. Then, it was decided to see if Aurora would acquire the speech and motor skills with age and practice. At present, her speech delays would interfere with her social activity according to the teacher's reports. The teacher documented that Aurora would seclude herself from group activities. She would play along side of her classmates but she would never play with them. Aurora was very socially inhibited during class play or discussion, which is believed to be correlated with her speech impairments. This was a noted battle as the speech pathologist expressed they had never been unsuccessful until my daughter in getting a child to master the C, K, and G sounds.
In first grade, Aurora was constantly getting negative remarks on her writing. On assignments, she was only getting a small portion completed and submitted compared to the other students because of her need for occupational therapy. Following a consultation with the WVPTI Trainer, I had submitted a letter to the teacher and the principal requesting a SAT meeting. During the SAT meeting, we did explore the potential for occupational therapy services. It was determined Aurora's neurologist write a prescription for this service to get approval through the Board of Education. After a lengthy process of fighting for Aurora, we were able to get the needed services to address her speech and fine motor skills needs. Aurora continues to thrive and is doing better every day She is learning to tie her shoes and has been successful in buttoning her own garments.
I dream of Aurora with a future of continued happiness and learning. She has expressed during Summer Academy of her aspirations of being a teacher when she grows up. I hope that she continues to dream big and follow her dreams and these dreams include higher education.
My advice to other families is to never give up and to learn what your rights are as a parent, and what your child's rights are as a student. As quoted by Julie Andrews, "Perseverance is failing 19 times and succeeding the 20th."
WVPTI has been a wonderful resource during this process. They were able to educate me on the IEP process, as well as my rights within the process. Through a parent support group convened by our region's trainer, I was able to gain peer support and better recognize the challenges and obstacles that still await us to allow me to prepare. The medical diagnosis and having an IEP to give Aurora what she needed has offered her a brighter future. With WV PTI's assistance, I was able to learn key skills, including documentation which assisted me during the struggles. My family is very appreciative of all the wonderful support WVPTI has been able to offer.
Submitted by Jessica, a parent
My name is Crystal and this is my daughter, Katelyn. She is almost four years old. We are residents of Taylor County. As she was developing, we noticed something was not quite right. When trying to get Katelyn into early preschool, she was first denied according to her evaluations. I was able to get her a second opinion. Then, she was diagnosed with ADHD and Autism. From there, we enrolled her into school with an IEP. Also, we went to see a vision specialist where she was diagnosed with Cortical Visual Impairment. After revising her IEP, I noticed her needs were not being met in school. By the end of the school year, my daughter's IEP plan was not being followed as promised. I was discouraged and disheartened. I wondered why my daughter wasn't getting the help that she needed. Then, a friend invited me to a WVPTI training with Mrs. Pat Elliott. I was so grateful because I learned so much and how I am the voice for my child. I asked Pat to help be my advocate and assist me. I am so grateful for her and her help in making sure the accommodations are being completed for my child to give her the best education possible! I can't wait to see what the future holds for Katelyn!
Submitted by Crystal, a parent